The RRR campaign managers are joining NORD and celebrating the specially designated day for International Rare Diseases. We are also declaring Sunday February 28, 2010 as the first ever Trimethylaminuria (TMAU) Awareness Day. We are joined by the entire TMAU community and our supporters:MeBo ResearchThe NY/NJ/CT TMAU support groupThe Trimethylaminura FoundationThe Trimethylaminuria Yahoo support groupIf you have TMAU, suspect you do or are a supporter of someone who does, join us in raising awareness and funds for the NORD TMAU fund. As a community, as of January 14th we have raised $9585.00. We set out on October 1, 2009 to reach a goal of $30,000 in 1 year for a request for proposals for TMAU research. We are proud to say that we are on our way there. February 28th is a great day to push forward. To participate on this day, please make any donation amount you or your supporters can give. (Even if it is a dollar!) It will be exciting to see how many people we can get involved in this process! NORD will give us the total of all donations made online that day as well as checks mailed in the week prior and following. More exciting, NORD will give us the total amount of people that donate that day! As the NORD slogan states, “Alone we are Rare. Together we are strong.” ITD will be a day in which we can all reflect on the struggles and the victories that we, both individually and as a community face. Let this year serve as the benchmark so that in future years we can have a point of reference of how far we have come. How many people can we ask to support us in our effort to get research started for TMAU!If you have any questions please contact the rrr campaign managers
Amanda- amandasky82@yahoo.com
Cheryl-Cher850@yahoo.com
Joel-Joelm211@yahoo.com
To Donate online: or Mail to:
or Mail to:•Go to http:www.rarediseases.org•Write a check with your
•Write a check with your •Click on Donate Now chosen amount to
chosen amount to •Enter donation amount or “National Organization
“National Organization choose other amount for Rare Disorders”
for Rare Disorders”•Under “In Honor of,” please type • Under memo write
• Under memo write the following TMAU Restricted Research “TMAU Restricted
Fund Research Fund.”
Research Fund.” •Click on View cart, Checkout. • Mail check to NORD
• Mail check to NORD Then proceed to checkout. 55 Kenosia Avenue
55 Kenosia Avenue•Please type your address and PO BOX 1968
PO BOX 1968 billing information and click “Checkout" Danbury, CT
Danbury, CT •NORD will mail you a letter confirming 06813-1968
your donation to the TMAU Research
Fund which can be used for tax deduction purposes in the U.S.
